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Different Diagnoses, Different Emotions

  • Jan. 13th, 2009 at 4:24 PM
The letter has come describing my ADHD diagnosis.  It has praise for my coping skills and commitments, and suggestions for where to go from here.

How different from learning to live with Asperger's, which has no diagnosis and no way of hoping for progress in social areas.

How different is THAT from my friend and her community, the young and prime-time adults struggling with and dying from Huntington's Disease.

One thing we have in common, though -- our lives are dominated by strategies for fighting against genetic limitations.  The fight tires us out.  It reshapes us as we live through it again and again, making strategies into habits and habits into fundamental personal characteristics. 

Does everyone have a pesky gene inside them, or are we really that different?

Surprising Diagnosis

  • Jan. 5th, 2009 at 7:19 AM
You can check my other blog (http://politywonk.livejournal.com) to see what happened when I went to get my Dx.  The short version is that I was actually looking at ADD side effects.  Thanks to the wonderful Dr. Patricia Stone, I discovered that Aspies is not my problem at all - it's actually a combination of ADD, high I.Q. and living too far away from similar intellectuals.

So the obvious question is whether I am going to give up this blog.

It's been getting less anyway, so I guess I have to let it go.  But the one thing I have to leave is that it really pays to get that diagnosis!  Aspies is so much in the news that I cannot be the only one misinterpreting the symptoms of other neurological realities into this vein.  I now know what to work on.

But there are those social issues -- waht about them?  She said my social skills seem perfectly good to her (we chatted for two hours), and I protested about missing social cues.  I do -- people hate it --and I hate missing these folks, their lives, their views! 

She attributed this to two things: 1) not being in the right community, and therefore not being with people who share my interests and whatnot, and , 2) the stress and anxiety of dealing with untreatred ADD, having constantly to keep focusing on whatever I am doing, excluding attention to those around me.

She said that response to the ADD, in order to lessen the anxiety and stress, falls into three categories.

1) medication -- either western or homepathic
2) self-strengthening through some workbooks that she recommends (I will post these when I am home from vacation)
3) coaching for social situations in which I get too stressed to be my best.

And then she had a fourth for me to consider -- spending more time back in my academic stomping grounds, in order to be with people with whom I can relax and share my interests at my level.

Okay.  Sounds good.

People files: Online and Inside

  • Dec. 8th, 2008 at 7:34 AM

I am trying to look not at what is wrong with me but at what has helped me weaken my weaknesses over these past 54 years.

I can't say enough good about online people organizers.  I got my first one in 1994, almost as soon as I got my first personal laptop computer.

What bliss to have little boxes for each family or person, with other little boxes to enter in their comings and goings in my life -- one for e-contacts, one for phone calls, one for facetime. 

Over the years, I have maintained these files more irregularly, as I've gotten better at choosing and maintaining relationships.  There is no question that doing this for 14 years has substantially upgraded my neurological synapses for feelings. 

When I started my anti-depressants two years ago, there was intense pain for the first two weeks.  I didn't like the pain, but at the end of it, my synapses worked even better.

And they still do, all the time.  Working at Macy's is their daily gym, as hospital chaplaincy once was.  Living in Burlington, a small town where people can't help using the same small circuit of businesses and social events, running into each other in our few hours of outisde activity, has been a godsend in making it natural to keep updating what I know of them.

It is to the point now that I am having to work more on centering -- sticking to people who reinforce my special interest -- because I have such love for this chat-chat life I lead.

So that's enough of this for now.  Keep in touch.

Aspie

Pot Calling Kettle Black

  • Dec. 4th, 2008 at 7:36 AM
Yesterday I had the fun of returning to a Rail Advisory Council meeting, not as a leader but as a mere note-taker.  It was MUCH more comfortable than being at the table.

And I kicked off my shoes and sat cross-legged on the floor in the back, with my computer on my lap.  This was great amusement to the men around me.  I did stand up to speak, once.

This reminded me that the nephew's aversion to regular pants could be compared to the problems I have always had wearing shoes.  My feet feel "claustrophobic" whenever I can't stretch them, bend them, wiggle my toes, etc.

Ah, humility --- the most useful of virtues, the hardest to maintain!

Sweats vs jeans

  • Dec. 2nd, 2008 at 11:03 AM
It's been a long week. the Nephew has been here, darling that he is, and we've been quarrelling over getting him to wear "real pants" -- with zippers and woven fabric, on a daily basis.  He currently lives in sweats, even around the university.  When we were going out to dinner in Montreal, his uncle asked him to wear "real pants."  In order to avoid making a last-minute purchase, he borrowed a pair of spice brown cords from me, pulled them in tight with a belt, and draped a long mock turtle over them.  He looked great! 

More to the point, he looked better than the young women at the next table, in distressed jeans that were way too tight and low, showing off a fleshy band of hip despite the cold.  They were wearing sweatshirts and such as well.  I had to admit, my nephew had a point.  Clean sweats would not have been worse.

Thank God I had the forebearance -- rare for me -- to set him up with some of my own and tell him he looked great -- which he did!  Later on, I continued to harp on the subject, setting the whole thing back by ages.

To his credit, my nephew asked me what I saw when I saw someone in sweats.  He was stunned to hear such things as "couch potato," "out of the asylum for the weekend," "lazy."  

Ia anybody out there on this one?  What do other folks think?

The End of Symbolic Intelligence

  • Nov. 21st, 2008 at 8:22 AM
One of my great loves in early adulthood was Japanese cultural studies.  Any kind -- books, pictures, museum exhibits, movies -- you name it, I came alive in its presence.  (No accident that one nephew got the same turnon and now has a Japanese wife and annual visits across The Big Pond.)   Anyway, this was a highly-organized, carefully nuanced symbol system in which everything had its own meaning.  I especially love that courtiers and their lovers would layer their kimonos so that that there was a sleeve color WAAAAY underneath that could be flashed at the right time to send a basic message -- sad, happy, longing, going away... whatever.  Every flower had a significance (probably why they were displayed one by one).

The tea ceremony movement led by Rikyu was a dramatic reform of all this.  The server, regardless of social rank, would serve the guests by hand, bowing as one does for a guest.  This applied even when the guest had lower outside rank.  The guests were also equal among themselves, regardless of social levels outside.  And the tools were simply, even roughly made.  They were few and the host -- no servant -- cleaned them up as part of the ceremony. 

As a third generation academic, this is very much the way I feel about academia today.  Yes, it has accumulated great knowledge, and contains many brilliant people.  Yes, I love my time with them.  But in its own conversations, the symbolic elements and meanings have all been assigned.  You can add and subtract, but not alter the basic pattern, except through generational change --which the tenure system has almost completely wiped out. 

As government and high finance have gotten more and more reliant on this elaborate and arcane symbol system for information, they have lost their ability to think things through.  There are now a whole ton of economic articles coming out that I, a lowly Macy's sales associate, could have predicted, written and documented over a year ago.

Why?  Because symbol knowledge is indirect, and we who work with our muscles and senses have direct knowledge.  Deflation?  I documented that on Wednesday, during the Biggest One Day Sale of the year.  In the morning, with the Ten to Spend coupons and extra deep morning discounts, the place was packed.  We even had lines at our registers, every one of which was open and staffed. 

But when One O'Clock came -- the magic hour when the morning discounts end -- the place emptied out like a bar at closing time.  I have never seen such an empty One Day Sale, which is always our biggest one each month.  We got anxious waiting for the after-work crowd, and it wasn't that thick.  People made plans to get things done as they waited for the NY-imposed eleven p.m. close.

THIS, my friends, is direct intelligence.  It is what the men used to have when they worked as artisans rather than human robots.  It is what women had when they made the family's food from stuff they grew themselves.  It is what children acquired as they toddled along with their elders, being given the tiniest and easiest jobs, from pouring in the measuring cup to passing over the screwdriver. 

If there is one good thing to be gained from the economic collapse we are enduring, it will be the eradication of this symbol system, in favor of a little more direct intelligence.  This is what Hillary Clinton was getting at and Sarah Palen was pretending to: gaining the wisdom of people whose lives are experiences rather than symbol systems.

I wouldn't take things as far as Rikyu --who was, after all, eventually executed.  Good symbols point to real facts -- phonics, numbers, police sketches -- that need to be respected.  There is no need to go so far back as reinventing the wheel.

But how the wheel is connected to the axle is a valid question right now. 

Pressing, even.

Friendship Is Tough

  • Nov. 10th, 2008 at 5:06 PM
By far the worst part of being an aspie is how it saps my energy for friends.  Being with people is hard -- like hours of translating a colloquial document into a language you have been learning for not-too-long at school.  And that not-too-long at school never changes, because so far as I can tell, the neurons or synapses or whatever it takes to read and feel people just never seem to connect.  As a result, when life gets hard but busy, I can't just call someone up and relax, because being with them will in itself be taxing.  I will need extra time with my special interest or personal pleasures -- cats, photography, music -- to replenish them after we have our visit.  It also works in reverse -- I can spend extra time preparing for them, and that works.  In some ways, it works the best.

But what about those friends with whom I share my special interest?  Our time together exhilarates but exhausts, because it tends to resemble work.  What I miss is the kind of friends I built up over time in the past places I lived, who shared my outside interests: travel, movies, literature, operas.  Now those friends are too far away to do things with, but doing those same things here lacks the pleasure of sitting together, walking together, eating together, talking together, just being together. 

I know I have to keep on doing those things, so that if I meet someone who shares those interests, they will think that in meeting me they have met a kindred spirit.  I can say I love movies, but not if I haven't actually gone to see one in ages.  I can say I love to travel, but where have I been? 

Well, yesterday, after I preached out in a nearby country town, I turned my car away from my own home and drove off into Vermont.  It's not as scary as it sounds -- I recognized that name of one of the nearby towns as a place where I had been and enjoyed a good meal at a homey restaurant.  And sure enough, there I went.  The food wasn't quite what I was in the mood for -- comfort food when I was feeling celebratory -- but the ambiance did the job.  And afterwards, I drove home over some roads I had never seen before.  It wasn't much -- but in the beauty of Vermont's current glorious autumn, I was traveling

Love

  • Sep. 24th, 2008 at 7:11 PM
It's been a fun week with people who are neurologically different.  First I was down at Harvard doing some research, with people whose academic skills and knowledge bases are easily at top rank.  Then it was back up to beautiful Vermont, where the first colors are kicking in, for a weekend with friends and family who are different in less lauded ways.  One friend is somewhere on the autism spectrum, and the other one has a daughter with Down Syndrome.  All of us are single.

And what struck me is how happy we all were playing in the Bristol playground with that five-year-old.  It isn't just that she's a lively and beautiful little girl whose mother keeps her fully connected with the world.  It's also that she's a loving child, who reaches up to be carried, who calls us all to look at little rocks and flowers, who leads me down the street delightedly to the swingset.   I kept remembering how many of her forebears had been locked in freezing stone institutions, neglected or even abused.  What genocide of the spirit! 

But hers was not so afflicted.  And as we sat there in the fading light, each of us on our swings, my friend with the daunting command of sports statistics revealed that he is also a lunch-hour mentor at the local elementary school, and has been for five years.  Like me -- the voluntary babysitter who let the mother sit over dinner for a change -- he thrills to have some children in his life.  He cares for his aging mother and even helped me generously build some furniture.

So it came as no surprise that in the end, a final conversation addressed the search for love.  Despite our histories of frustration, even as middle age engulfs us, even, in my case, begins to leave me behind, we're still drawn toward its warmth.

And later, my nephew came down from the university to share a dinner with us.  What he thought of my friend, I don't know.  But even though the nephew slaughtered me in Scrabble (406 to 294), it didn't matter.   We were cooking the veggies we had grown together, and he was making his favorite dessert, from a cookbook his mother had given me.  My friend finished climbing Mt. Mansfield and we sat together talking.  Practicing, perhaps, for people who know how to love us.

Good Idea, Tough Book

  • Sep. 11th, 2008 at 10:07 AM
Well, I've had a response to Anna Cvetkovich's book about the extended trauma of living queer in a straight world: good idea, over-academically robed.

I should have known.  How else would she get on that faculty?

But I still think the concept has value for anyone living outside imposed gender images.  We have a primary drive that is not considered normal.  We do not have publicly accepted channels for it, honors for it, even, in some cases, names for it.

Aspie attraction is to a mind.  If the body doesn't fit the shape of one's desires, that can be confusing and even harmful.  If the sexual attraction doesn't work out, the aspie may lose the only significant sharer of a special interest.  I think this is probably why my family has a record of marrying early in the dating process -- often in the first serious relationship.  Likewise, that I regret not having done so.

On the other hand, there can be really excellent marriages of one or more aspies.  My own Mom and Dad are exhibit A in this regard, as well as their parents.  My siblings, aspie and non, have done fairly well, even with the occasional reshuffle as interests change.

Is this a trauma?  Yes, for both the aspie, and for those who look to them for "normal" behaviors.  Some kids of aspies will grow up rejoicing that they lived in a world of choices, while those who wanted "normalcy" will be angry at having had no parental nurture of it.  The same is true for parishioners with an aspie minister.  Some will rejoice in the prophetic courage, while others will be angry at not having that "father" or "mother" they want to either replicate or replace. 

There is no perfect spouse, lover or parent in this world, aspie or not.  But it helps if we do not try to fit other people into boxes we have drawn for them, but let them become themselves.

Queer Life as Trauma

  • Aug. 14th, 2008 at 3:52 PM

I haven't read this, but I'm thinking it will help me understand some friends who are just not feeling that the current election choices matter very much in their lives.  I am sure there is much more to be read and said on the topic, but this sure looks promising.  (More from me below this paste-in.)


http://www.dukeupress.edu/cgibin/forwardsql/search.cgi?template0=nomatch.htm&template2=books/book_detail_page.htm&user_id=814155025678&Bmain.Btitle_option=1&Bmain.Btitle=An+Archive+of+Feelings&Bmain.Subtitle=%3A+Trauma%2C+Sexuality%2C+and+Lesbian+Public+Cultures

Here's what it has, new from Duke University Press:

        


















 
An Archive of Feelings: Trauma, Sexuality, and Lesbian Public Cultures
Ann Cvetkovich



368 pages (February 2003)
41 illus.

 

Cloth - $84.95
ISBN 0-8223-3076-8
[ISBN13 978-0-8223-3076-9]

Paperback - $23.95
ISBN 0-8223-3088-1
[ISBN13 978-0-8223-3088-2]

In this bold new work of cultural criticism, Ann Cvetkovich develops a queer approach to trauma. She argues for the importance of recognizing—and archiving—accounts of trauma that belong as much to the ordinary and everyday as to the domain of catastrophe. An Archive of Feelings contends that the field of trauma studies, limited by too strict a division between the public and the private, has overlooked the experiences of women and queers. Rejecting the pathologizing understandings of trauma that permeate medical and clinical discourses on the subject, Cvetkovich develops instead a sex-positive approach missing even from most feminist work on trauma. She challenges the field to engage more fully with sexual trauma and the wide range of feelings in its vicinity, including those associated with butch-femme sex and aids activism and caretaking. 

An Archive of Feelings brings together oral histories from lesbian activists involved in act up/New York; readings of literature by Dorothy Allison, Leslie Feinberg, Cherríe Moraga, and Shani Mootoo; videos by Jean Carlomusto and Pratibha Parmar; and performances by Lisa Kron, Carmelita Tropicana, and the bands Le Tigre and Tribe 8. Cvetkovich reveals how activism, performance, and literature give rise to public cultures that work through trauma and transform the conditions producing it. By looking closely at connections between sexuality, trauma, and the creation of lesbian public cultures, Cvetkovich makes those experiences that have been pushed to the peripheries of trauma culture the defining principles of a new construction of sexual trauma—one in which trauma catalyzes the creation of cultural archives and political communities.

”Avoiding bullshit moralism and sentimentality, Ann Cvetkovich breathes new life into the study of trauma. This is the book I looked for in so many libraries and bookstores and never found. It is not only brilliant but totally necessary.”—Kathleen Hanna of the band Le Tigre

 

An Archive of Feelings makes an extremely important contribution to queer and feminist cultural studies by insisting upon the public, and indeed national, dimensions of sexual trauma. Ann Cvetkovich's book argues for the productive rather than repressive power of trauma and accounts for its role in the production of queer identities and queer counter publics. This is queer cultural studies at its finest!”—Judith Halberstam, author of Female Masculinity

 

 

Ann Cvetkovich is Associate Professor of English at the University of Texas at Austin. She is the author of Mixed Feelings: Feminism, Mass Culture, and Victorian Sensationalism.

And this seems like the perfect time to comment on the lame efforts of some clergy to show solidarity with GLBT oppression by refusing to conduct straight marriages.  

Honey, that's WAAAAAY down the line!  

The real solidarity would be to quit holding your own sweetie's hand in public.  

Take h/h picture off your desk.  

Come down to my shop at Macy's and look for the latest gender-safe clothes, because, frankly, creative straight dressing is too foreign to try on your own... and then wear those clothes almost all the time.  Prepare for stressful work situations by taking off your favorite jewelry and clothes.

Just my imaginative thoughts on what this book is probably talking about... and why we have a LONG way to go before "separate but equal" even applies.

Bell and Women

  • Aug. 8th, 2008 at 3:33 PM

Was Gertrude Bell a lesbian?  It's a fair question: she never married and clearly her love of work cloaked a secret heartbreak.  And a manly mind in a woman might well indicate a shared appreciation for women's beauties.

But Bell's secret hearbreak was that she fell in love with married men with whom she shared her professional and sporting interests.  It looks as if a key to her suicide was the mundane tragedy of failing in her attempt to marry a man who enjoyed her companionship but refused her anything more after he was divorced.  He was seventeen years her junior, but enjoyed her company well enough until it was romanticized.

The second element of her sadness was the end of her work as a liaison between the British and the Arabs of Iraq.  Once the latter could speak for themselves to the former and to the world (as the first Arab nation seated in the League of Nations, the role she had championed for them), her go-between function was ended.

And her relations with women bespoke the opposite of desire.  She despised most Englishwomen and they returned the sentiment.  She found them frivolous; they found her arrogant and cold.   She did not support their right to vote in national elections, as she thought they cared nothing for world events.

When it comes to Arab women, however, she took at least an abstract interest.  She spent time promoting public measures for their health and education; for the few she was allowed to know, she endeavored to provide European-style clothing ttrying to mao replace their veils, and guidance by which they might learn to speak in mixed or open company.  She surveyed harems with concern, but there is no record that her eye singled out any individual as an object of desire.

Despite her conventional and unsuccessful love life, Bell's accomplishments were  sufficiently inspiring to women and men of whatever sexual orientation that the reprint of one of her books is by Beacon Press.

Another Gender

  • Aug. 6th, 2008 at 12:10 PM

I picked up Janet Wallach's Desert Queen: The Extraordinary Life of Gertrude Bell: Adventurer, Advisor to King's, Ally of Lawrence of Arabia for something fun to read while journeying home to New England from my family in Ohio.  Of course, "journeying" is hardly the word to use in comparison to her!  Tiring of her affluent English home, and having failed to find a husband in the requisite three years, Ms Bell headed to the Middle East and took to riding camels out into the middle of it.  

She was the person who, possibly more than any other, contradicted the myth about the desert that "there is no there there" (Gertrude Stein's description of her own childhood home in California, which she also quit for more interesting older worlds).  What began for Bell as a search for protectors during her wanderings (she had archeological aspirations) became the most sophisticated knowledge that possibly anyone has ever had about the different cultures, leaders, histories, peoples and lifestyles of "The Orient."  Having "gone local" somewhere in the process, she started importuning the British governors on behalf of the realities of her friends, hosts and even enemies.  What had begun as social connections from her wealthy family background and Oxford college education evolved into a job in political intelligence and role in political intelligence.

Okay, those are the facts.

But what makes Wallach's book so fascinating is her exploration of Bell's sense of a personal gender.  There were ways she was very feminine;  She loved dressing in the softest, latest, most extravagantly fashionable clothes -- even in the middle of the desert!  She was a connaisseuse of good food in several cultures, and lover of beautiful gardens.  Unable to hold her tongue long enough to attract a conventional husband, she fell passionately in love with two of the very few men who shared her spirit and interests.  She enjoyed flirting and being flirted with both Arabs and English, no matter her age or theirs.  Her journals and published professional writings linger lovingly over details made vivid by delicate, extensive English vocabulary, reflecting the reading material she carried and regularly renewed by packet ship, along with new fashions.

Yet she was known primarily as a man in the wrong kind of body.  Her intellect was not only keen, it was military, handling strategy, tactics and supplies with comprehensive scope and efficient focus.  Her body thrilled not only to fine clothing and her portable canvas bathtub, but also to mountain-climbing, camel-riding and brisk morning forays on horseback.  Not for her the side-saddle canters of her peer group -- along with her silks and flowery hats, she owned split skirts for galloping astride.  And along with her detailed writings she drew accurate maps that laid out countries over which we are fighting today.

Wallach first published this book in 1995, before the Bush War in Iraq.  That this war would come, Wallach seemed certain, primarily because Gertrude Bell anticipated it.   And I am just now reading the portion in which Bell and one or two colleagues, Arab and English, predicted exactly the divisive complications that would entwine in it.  

1995 was also before the current curiousity about Asperger's Syndrome.  Yet over and over, Gertrude's journal conveys exactly the kind of confusion, especially over gender identity, that is the female Aspergerian life.  Her easiest and longest friendships were with men, smoothed by her adventureous altheticism.  She only developed a respect for women's lives late in the game, as a refinement of her special interest in Arab culture and a safe niche in colonial expatriot culture.  Children appear to have played no role in her imagination, except when pondering whether she should have consummated her love affair with a married man who was killed in World War I, leaving her with nothing of himself.  She whipped through domestic improvements when setting up camps or homes, but always put them in the hands of servants.  Not for her the joy of daily creation in creature comfort: she wanted only to partake of others' labors at the end of days immersed in her special interest.  She did indeed write that what she wished she could have was "a wife."

Wallach, apparently quoting Bell, says that her overarching goal was to be known as a Person.  Not a man, not a woman, not a social construct, but a creature of her own life, mind and body.

One way Gertrude challenges what I had been thinking about Asperger's is that she was a good extrovert in any realm.  Whatever she did or did not feel, she managed to convey conventional manners sufficiently to make herself welcome.   Her driving ambitions appear to have been 1) never to sit still, and, 2) never to be alone.  These combined in doing social improvements with women friends when she was in England, but moved more readily into mountaineering and then desert explorations as the Englishwomen settled into (or died of) childhrearing.  

Ever the general, never the servant, Bell stocked and supplied guns for her entourage, but apparently did not fire them for herself.  Indeed, it was her commandeering style which most contradicted the image of womanhood that prevailed then as still is common today.  She delivered herself of definitive information and uncontrovertible instructions with a confidence that was described as arrogance but sought out as a national asset.  In the end, it was her excellence in her special interest which overrode the social limitations of her gender.  

Yet it was the gender frustration of Asperger's which killed her.  After the death of her almost-lover at Gallipoli, Gertrude's private hours lost all joy.  She committed suicide in the week before her 58th birthday: with no waiting at home when she was done creating Iraq, retirement held no temptations.  Too late, she had realized that the manners on which she relied for so many intellectual joys had smothered the love that had been offered in her prime years.  Atheist though she was, her upbringing had led her to respect conventional dictates against adultery -- even as the stable world based on hypocritical fidelities self-destructed.   

In that sense, she was not only history's maker, but also its victim: had she and her lover met ten years later, they might have managed a go in the new, role-bursting internationalism of Gerald and Sara Murphy, Ernest Hemingway, Gertrude Stein and Alice B. Toklas, Pablo Picasso and Henry Miller.  Indeed, it was the traditional midwestern romantic, Scott Fitzgerald, who could not manage his soul amidst Persons such as Gertrude Bell had taught the new dis-order to respect.

Adding ADD

  • Aug. 4th, 2008 at 9:27 AM
Lynne reminds me that I need to stay on the ADD question.  

Right now, I'm working on the spiritual goal of defining rhythms in life: when I do which kind of task and when I do none at all.  Jewish spirituality about the Sabbath -- time for knowing and praising God -- is my main source right now.  

But as I tighten things up, I am losing that sense of God in all things which is a hallmark of Universalism, of any mysticism.  I used to float across the top of the world, a sharp mind and open heart.  Now I rush from one thing to the next, trying to stay on top of what must be done and reconnect my relationships with the friends who have reached out to me.

The irony, of course, is that one cannot deepen relationships with friends and family just by doing one's jobs better.  Whether they are housework or paid work of what, they are servants of the flesh, not the spirit.  

I am happy with the fruits of mind-training, but maybe I've been working on that too hard.  Suppression and repression are no friends of a healthy soul.

This would be the reason for pursuing ADD medical work: to let my mind relax about staying focused, and look around more comfortably.

I have told Lynne I will pursue it after Christmas.  I'd love to do it sooner, but my plate is currently full.  So here it is, the level of growth I have set for 2009.  It adds a new New Year to my process: not just the one that comes from August to September and then again at Vernal Equinox, but also the one that lands with each new western calendar.  But this is the one on which I became a vegetarian -- the one when I was 19 -- and it has worked out well.  So maybe having different arcs for different parts of life -- a sort of fugue -- is one way to thrive without giving in to chaos.

 

Roping in the Learning Disability

  • Jun. 13th, 2008 at 9:30 AM

My nephew has lived with me for over a month, and his approach to being on the spectrum is really excellent: "I don't care what you call it, I know what I have to do."

Good point, especially at this stage of the science in autism.  So here's what I have to do, starting Sunday, when he leaves.  It's already been percolating inside me, so I think it's really got merit.  

Having spent quite a bit of time this spring getting a handle on this aspies thing, it's now time to put it in its place!  Yes, indeed, I now understand the need to fight my extroverted curiousity by relentlessly narrowing my focus in ministry.  No more parishes!  When they're good, they exhaust with the attempt to drink in every experience.  When they're bad, they send me flying off into every unhealthy distraction I can get my hands on.  This reflects the fact that I have a learning disability around processing feelings, but I still have lots of feelings trying to be processed.

So here it is: the time at last to focus my ministry on two foci only: serving historians and honoring wedding couples.  When I guest preach, these are my topics.  When I advertise or enter collegial meetings, these are my reports.  When I sit in my study, these are my foci.

But more than that, when I advertise, these are what I advertise.  So it's time to invest the level of work in history ministry that I did last year in wedding ministry.  I am not done yet with wedding ministry -- it was a slow year, and thus, I didn't know which frustrations were mine and which were the moment's.  Now, thanks to colleagues, I have a clearer picture.  I also have done it enough to understand how much time it will take to screen couples, that this will be the weekly activity most often, that the ceremonies and even the P/E will come much more rarely, and much more as celebrations.

As for history, I can't wait to tear into those old plans for writing the grant proposal to do the congregational survey!  And I (and my mother) have shelled out some money for professional summer clothes to wear while I start the book at First UU.   I am full of hope about doing a CENTER proposal, too, although I'm not sure what it will be.

And part of what this means is that at long last, being collegial will be less about parish ministers, and their endless feelings work -- as much as I enjoy it -- and more about the discipline of chatting with other historians about their work.

That said, my heart has recovered its adolescent love of poetry as a way to speak.  There will be a quarter every week of  immersing myself there, in what was once its most rooted meadow of flowers, weeds and bare spots.  Indeed, I can't help noticing that I've been learning to see things at root level, toning down the eye-chasing of every blossom in every field. 

It can't be a coincidence that this is the spring I finally got back to gardening and neighborhood onnections.

Circadian Rhythm Wipeout

  • May. 23rd, 2008 at 4:53 PM

Over the last few months, I've been working hard at discovering, developing, disciplining -- something -- a circadian rhythm.  This is a pattern of waking and sleeping energy as the earth makes it circuit around the sun.  It is a foundation for healthiness and productivity -- for meals eaten regularly in stable amounts, for work done consistently with anticipatable and graspable energy, for sleep obtained in doses the doctors recommend.

Not happening here, though.

Yes, there are some fixed points.  Left to my own devices, my energy tends to peak around the time other people are winding down.  This has been hell with my early-rising nephew under the roof, even though it makes me a great Macy's closer.  I have trouble getting to morning meetings, and shine when everyone else is staggering into the church for those evening ones.

But the glory of even this falls apart when I schedule things too close together.  I seem to need downtime in between major events.  Time to hide back in my head for a recalibation away from the previous feelings... or, conversely, to let the feelings of the previous event become articulate.  Time to rest from giving of my own feeling self until nothing is left and I really need a moment of intellectual refill.  Time to be alone with the self I experience in a way I cannot explain,  but which after all these years feels somewhat familiar.

And there seems to be no circadian rhythm involved.  If the downtime works, I'm back into energy.  If the downtime doesn't, the day is over -- even at 11 a.m.  

So what I've come up with is more like a learning disability schedule.  A dyslexic will be given extra time to take a test.  Someone who has trouble with basic math calculations will be given more time, or maybe a calculator, in order to work through the tougher problems that build on the arithmetic their brain cannot do.

So it is with me.  I read faces greedily, because I'm maximizing my interpersonal databank.  Yet my brain has an inferior storage function for that type of data, so only after repeated sessions will I be able to interpret somebody readily, based not on vocabulary I have retained, but from narrative we've accumulated together over time.

And that's part of the delay.  I need time to prepare for meetings by retrieving that data and slowly, painfully reviewing it.  How did we do last time?  What is their particular way of expressing?  What seems to matter most to this person?

It doesn't necessarily result in bad pastoring, but it sure slows down the ready exchanges and affirmations for which people come to religion gatherings, especially humanist ones.

And I desperately yearn for a stable of accessible tasks that rejuvenate me.  Administering the schedule?  Making certain phone calls?  Right now it's just logging into a tiny list of websites -- incredibly inferior to what I've had before.  Not as useful as what other folks get from meeting in the break room or at the water cooler.  I've done better before... what will it be as my new life takes shape?

And how do I explain all this as life moves forward?  I'm trying to figure that out.   The information about myself is not sophisticated.   Now it's not even mysterious -- it has a name and a forest of websites.

So all that's left is working up the courage.

Pleasing Others

  • May. 20th, 2008 at 9:38 AM

This is rad-- the first time I've posted twice sequentially, one right after the other.  But so it needs to be.

All my life, I have been heavily criticized for begging others for positive feedback.  "Fishing for compliments" was the nicest term for it.  Others would talk about finding my self-esteem and "just do what you have to do and move on."

But I can see now that this was a desperate attempt to achieve the woman's sense of connection without the usual woman's tools of empathy/sympathy/intuition.  Whatever it is that powers "f"s in this world.

My newhew is the opposite: he just plain doesn't care.  His self-esteem is something to behold.  He's a regular Popeye -- "I yam what I yam."  If somebody else doesn't like it, he's not going to change just for them.  He's not going to spend his life like I did, currying favor that never comes.

This is a good thing.

He has been lonely, of course, and now, up here away from his family, he is developing the geography thst fosters his first relationships.  He loves his Aikido dojo and participates in whatever support activity it needs.  He's exploring his religious heritage from the perspective of other congregations and leaders than the one in which he grew up.  He's not falling far from tree, but he's blossoming in his own little bits of sun.  And he seems inclined to carry on his mother's admirable career path when she has found her last little clearing beside that road.

Would it have helped if I had grown up with all the praise he has enjoyed?  My parents thought the thing to get me going was criticism, and they were relentless.  To this day, I consider fear of harsh graders a key reason I procrastinate with completion of tough projects.  

Would it have been different if I had been healthier?  To this day, I believe the event that changed my life was the major illness in tenth grade which sentenced me to average track classes in high school, away from my better friends in AP.  I will always believe that academic affirmation at that age would have changed my life.

But God did not have that in mind for me.  He didn't tell me what he did have in mind anywhere near as early as I wish he would have done.  All I ever wanted was to be a historian and constitutional scholar.  Academia was closed to my generation, and ministry of history turned out to be as well.  

No wonder I have wandered through the world like the little bird in "Are You My Mommy?" 

"How did I do?"  

"Was that what you wanted?"

"Is this okay?"

"I could do this a little differently..."

All of these add up to the same thing.

And now, thank God, it's over!

From Pleaser to Aspie: What Not to Wear

  • May. 20th, 2008 at 9:12 AM
Friday nights on tv have gotten thin after the public events shows on PBS, so I do more surfing than I should.  And often enough, that lands me at "What Not to Wear" on TLC -- watching yet another do-over show on yet another cable channel.  

I love do-over shows: I never quite figured out how to actalize the person inside me, and it is always so inspiring to see other folks in the same boat get saved by these cable-channel fashion messiahs.  Queer Eye, of course, remains the top of the heap, but this is the one I have considered applying to be on.  

This show begins with who the person is, socially and professionally.  They seem to have lawyers, mothers, artists, all kinds of professionals who just don't get the fashion thing, even in their own little world.  That's not quite me, because what I want to do is change worlds, yet again...

...so in the absence of a tv show rescue, the other day I got put to work in accessories at Macy's.  This time the jewelry spoke to me as if with a megaphone.  I am playing with the idea of putting together a look that starts with accessories, instead of having one of the same few standards thrown on at the end.  There are scarves!  There are earrings!  There are manicures!  There are necklaces!  And of course, my beloved purses...

And I also want to quit just wearing the same old basic fashion classics, bought on clearance to last many years.  I want to put together outfits that really snap.  I have shoppers in these, and even without being "dressed up," they've got it goin' on, with bright scarves and better jeans than I wear, nicer jackets over simple blouses, even teeshirts... Accessories, it turns out, make the woman stand out.

And what woman do I want to put out there?  Why, the historian!  Every minute with the history work now takes me closer to actualizing who I was meant to be.  Forget spending time chasing the weddings and funerals, this is a summer to head for the first "consulting historian" ministry in the UUA.  

It means travel to get to those who want what God made me, rather than waiting for it to come to me. 

It means showing that glorious CV far and wide, and getting people excited about paying for its bearer.

And yes, it means continuing to hone the necessary skills to a level that serves the parishioners.  Sitting in the local UU church basement with their archivist and sorting a box of donated files was second nature to me, but to her it was a phenomenal gift.  The boxes come in and she just sits there fearing a mistake that destroys crucial evidence of a sacred act or relationship.  Good fear, she is wise and faithful to honor it.    That's the kind of fear that calls for a minister's specialized hand.  Clearly I need to add preservation to my bag of tricks as I prepare to take this forward.

And I need to be clear that it means changing how history gets done in our assocation.  We've wandered around with placing it: Beacon Street, districts, philanthropic societies.  Each of these accomplishes something vital, but none of them can sustain the level of effort required by a real people's history of this people's religion.  For that, it will take full-timers.

This is the call I had all those years ago at that computer at the Library of Congress, tracking scattered developments around the breadth of South Asia.

And this is the moment when the call coming from the people matches the call echoing around in my head.

No wonder for the first time I don't feel lost: I feel ready to dress for the stars and hold up my head.  My eyes are ready to look people in the eye and give them hope.

And all because, as an aspergerian, I have learned that the key to success means not feeling guilty about your special interest, but honoring it as a stewardship from God, given to few, and worth fighting to achieve as a parent fights for the health and happiness of its only biological child.

Diagnostic Journey

  • May. 9th, 2008 at 4:12 PM
Thank God once again for L and her experiences with Huntington's Disease!  She has learned so much about this obscure art of neurological self-empowerment against the odds, and she shares it with me so generously.

So when I started looking into whether I have aspies, it seemed simple -- one of several things to be accomplished on a Tuesday.  Not so fast, there!  L sat me down and took me through a list of potential questions -- and asked me what the answers might well be.

Her interrogation brought me face to face with the reality that even if I do have aspies, there is no clear test or diagnosis, but choices to be made on how to get there.  And without a map, there are going to be some intervals of map-reading in the sun and feeling for moss on the north side of trees in the dark.

Because it also appears that I might not have aspies; it could be something else, such as ADD, that's complicated my life in ways that look like aspies but are not.  

It could also be some other form of autism (ugh).

And, of course, I could just be a hopelessly screwed up person.  There are people who think that.  For most of the last two weeks, I have been one of them.

But I'm not hopelessly screwed up, or at least, I love people who don't want me to think that or become one.  And I believe too much in my special interests to abandon my ego-defining efforts to move them forward.

Hence, I have spent the past two weeks adjusting to the prospect that this diagnostic journey will take at least all summer.

First, there has indeed been the nagging little question of adjusting to the uneven legs.  Aspies hate wearing tight clothes, and for me that has always meant shoes.  So today was a red letter day: I discovered my new heel lift will fit into my favorite slippers and stay where I put it all day long.  I already wear these slippers quite a bit, and now that I've got the heel lift adjusted so that it doesn't keep slipping into my cavernous arch, I think we can call it a victory.   Less pain inside the house!

The next phase is moving in my nephew for his month or so with me, and learning to live with another person.  This morning I dreamed again about changing his diapers as an infant!   He also has designated me to teach him to drive, and I have designated him to help me put in a vegetable garden.  This is not gonna be all Scrabble and double desserts!

Thus, it will be mid-June, after he heads to Philadelphia, that I'll resume my hunt for the ADD diagnosis.  Since that is a known syndrome, with known markers, symptoms and treatments, this discovery has the potential to move me forward in one big leap.

That move, however, no matter how useful and liberating, will be fraught with powerful feelings.  I will need to take at least a month to adjust to either taking the new medications or living with the disappointment about not being eligible for them.  It will therefore probably be late August-September before the aspies quest resumes.

The good news is, the scientists are making progress.  Maybe by then it will be easier.  This could be the summer of the miracle... I'm not a curebie, but I do love accurate information!

Improving from the Ground Up

  • May. 8th, 2008 at 12:11 PM
In my ramblings through various diagostic sites, I discovered someone who thinks they've noticed an unusual abundance of clubfeet among females w autism.  

Well, that smacks of phrenology (study of skull shapes -- also big in autism research, albeit more scientific than the 19th century version) and did not appeal to me.

But the fact is, I've spent several decades having health care professionals, beginning with a Massage Therapist, ask me if I realized I had a curved spine.  One hip is really lower than the other. 

And I've spent even longer being admonished by my loving elders to "Stand up straight!"  "Quit slouching!"  So for over ten years, I have dutifully responded with posture visualization, spiritual centering, exercise and physical therapy.  I sit on 19th century posture-promoting chairs.

I have also helpfully mentioned to anyone who might need to know that "my spine is really crooked."

Then about a month ago, I met Dr. Andy.  Who knows, maybe he's not even a doc, but might be a nurse practicioner in the orthopedic surgury practice where he treated me.  But the fact is, he said, that one leg is functionally longer than the other.  My sacroiliac needs me to wear a shoe lift on the short side.

And there you have it :  I'm a female with autism (maybe) and a special clumpy-bottomed shoe.

I don't know about my brain yet, but my foot and back sure feel better.  I am even adjusting to wearing real shoes in the house, after a lifetime of bare feet, slippers and mocassins.

Maybe I'll get my skull measured after all . . .

Retooling Life Around Aspies: The MBTI

  • May. 6th, 2008 at 9:10 AM
Somehow yesterday's Pyjama Day marked a transition into life as an aspie...  Yes, I wish I had a scientific diagnosis, but there isn't one. Yes, I wish I were in a research study, but there isn't time to find it.  I just have to make decisions on how to operate.

My first step is rethinking my MBTI (Myers-Briggs Temperament Indicator).  I have always thought I was an extrovert, but nobody ever agreed.  I use the classic definition of extroversion, namely, that I get my energy from people.  True enough.  And as I wrote in an earlier post, this seemed to conflict with my aspies, because people simultaneously exhaust and exhilarate me.

But as I read more about aspies, things are looking different.

My "need" is for elder affirmation; I am not going to function well with peers.

My "need" is for folks who not only share my special interests, but do so in highly structured ways. 

Once I get those people and those structures, yes, I do indeed function as an extrovert.  Fool everybody -- even myself.  And then suddenly, things get difficult and the aspies flares up because I don't have enough emotional facilities for crisis or overload.

Thus, I "need" ways of being together that don't involve too much face-to-face and emotion. 

I've looked at all this, and gradually, lifestyle and professional decisions are settling in:

Networking is out.  If it's a big room, I can't sort out the faces and remember them from one time to the next.  And I certainly do not have the emotional strength to nurture relationships large and small based only on sympatico or mutual service. 

Covenants have been a helpful way to organize my relationship goals -- but there are too many of them.   In the past, as they have expanded beyond my control, I have simply cut and run.  So now there are all these leftover friendships.  And it is clear that it will take awhile for them to routinize and emerge from this professional limbo.  I was trying to push the transition with networking.  Now I know why that didn't work.

So I am going to have to make a different kind of push: to try and get all my eggs in the basket where they can hatch.  This is starting to happen as I push the envelope with professionalizing my ministry of UU history.   Thank heaven for the book contract.

Meanwhile, it looks like the key thing I need to do is get an ADD diagnosis -- one way or the other.  I am hopeful those drugs can help me focus and remember, and, in turn, get better at keeping or cleaning up my covenants.  

I'll be crushed if this is all going to be self-discipline from here on out -- I really would like that chemical crutch to get around better.

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